Blogging with Parkinson's

A personal perspective on Young Onset Parkinson's


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Portraits for Parkinson’s

My Portraits for Parkinson’s fundraiser (a subsidary to Sharon’s meticulously organised dinner and dance evening) happened last Saturday night, and I’m pleased to report that:

  • I made £120 for Parkinson’s UK
  • Everybody who came to me for a portrait seemed happy with the results
    (which were all very colourful Conté drawings)

I didn’t record any of the drawings, but here is part of the whiteboard that I used to advertise my services:

whiteboard

 

 

 


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“Am In Control?” – A Poem

Parkinson’s Awareness Week

(Some of the following is an exaggeration for poetic effect.)

The kids are off school,
Running riot through the house.
Am I in control?
Not really, no.

I’ve spent too much money;
My credit’s all gone.
Am I in control?
Not really, no.

The laundry’s piled high,
And the hoover’s hard to find.
Am I in control?
Not really, no.

I’m stiff and I’m tired,
And my left hand won’t work.
Am I in control?
Not really, no.

My toes curl themselves
So it’s difficult to walk.
Am I in control?
Not really, no.

But paint on the canvas
Goes smooth and as planned.
Am I in control?
Indubitably, yes.

Parkinson’s Awareness Week


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Parkinson’s Awareness Week 2014

Parkinson’s Awareness Week

This week (7 – 13 April) is 2014’s Parkinson’s Awareness Week, and we have a theme:

In Control?

In Control?

Not as easy to paint a picture of as last year’s “In My Shoes”, but a very good theme, nonetheless. It’s something that Parkinson’s takes away: control over your own body, control over your own life.

It’s something that is worth clawing back as far as you possibly can.

I haven’t been blogging as much as I used to. I know that some of my readers have noticed this. One reason for this negligence is that I have lost control of several aspects of my life and never seem to have time for anything. How much of it is directly related to Parkinson’s is hard to say, but the condition will have had an insiduous effect on much of it.

I have, however, come to realise that I can’t blame Parkinson’s for everything that goes wrong. I have to work on the assumption that I can do it – I have to take control.

Parkinson’s Awareness Week