I was planning on writing about how being in a proper routine – a going to work in an office sort of routine – helps me to do that crucial exercising malarkey. On a bicycle, no less. And I will. Continue reading
It’s around a month since I started taking 16 mg.
Obviously, this doesn’t apply to me, because I’ve been telling nearly everybody, including you, dear reader, but it isn’t surprising that many people don’t want to talk about having Parkinson’s. According to a New York Times “Well” blog post:
Doctors and researchers say it’s not uncommon for people with Parkinson’s to conceal their diagnoses, often for years.
– Kate Yandell, “Keeping Parkinson’s Disease a Secret”
After all the excitement of yesterday’s event, and writing it up in the wee small hours as I did, I completely forgot to include:
- A link to the official Parkinson’s UK Mervyn Peake page, where you can see the winners’ names modestly displayed, and where there is also …
- A link to the full list of Winners, including Highly Commendeds and Special Mentions with reproductions of the Art and Photography winning entries.
So, my first ever awards ceremony was this: The Mervyn Peake Awards 2012, a celebration of the creativity of people with Parkinson’s. It was held at the Merchant Taylor’s Hall in the City of London, a most impressively grand venue. Continue reading
I decided not to publish my poem or my painting on this blog until today, the 6th of July, because today is the day of the awards ceremony and the day that the winners get formally announced. Not that I actually won (although my poem got a special mention!).
This is a scheduled post, because I hope to be in London today, attending the awards ceremony and meeting some of my fellow creative Parkies.
Climbing steep up the face of the down;
Finding a place with a view.
Flat enough for all the gear
I gladly lugged up here.
Wrestling with the playful wind –
Canvas wanting to set sail.
The easel set, the box displays
Its ware of tubes of paint.
Umber and ultramarine to make the clouds;
Pthalo and lemon the grass.
Rose madder assists and titanium white –
Unsung, it brings the light.
Mankind has shaped this landscape
With flint, and plough, and road.
Perched upon my hillside,
I see, I hear, record.
You cannot see the tractor; I choose not to show
The chopper flying low.
Red kite stoops – but my knife, too slow,
spreads contours of the land.
Chalk underfoot and sky up above
Nature plays its part.
What am I to interfere?
I watch, I paint, depart.
as stated in the FAQ, we cannot provide clinically-relevant information to you, such as a diagnosis of Parkinson’s disease, because this is a research project not authorized to provide clinical information. However, we plan to give some informative data about your voice. Most likely, this will be the form of a set of numbers that ranks your voice quality among the general population, on a number of different numerical scales.
I hadn’t read the FAQ (Frequently Asked Questions), and I did want to know if their system could recognise any Parkinsonian features in my voice. Ah well. It’s still a good thing.
And I would urge you to call them, if you haven’t already done so. It must be one of the easiest ways to participate in a research project that I’ve heard of.
If you’re in the UK, call 01865 521168. If you’re elsewhere, take a peek at the PVI (Parkinson’s Voice Initiative) Web site to find your local number.