Blogging with Parkinson's

A personal perspective on Young Onset Parkinson's

Ropinirole Diary: the first week

2 Comments

I finally got around to starting my ropinirole. Although my Parkinson’s nurse told me that the current thinking is that you can go straight on to a small dose, I do have a starter pack (which is for four weeks) – largely because my GP was happier to prescribe it that way.

So. After a week of taking ropinirole (0.25 mg 3 times a day), I’m not sure that anything much is different. It may be that I’m feeling a bit less stiff, but that’s the sort of perception that is impossible to measure and which might have been affected by my knowledge that I’m taking a new drug. One thing I do know: I’m not very good at remembering to take tablets three times a day. I managed to miss three doses – enough for a whole extra day!

I’m kind of waiting for something more concrete to change: the ability to do up shoe laces at a reasonable speed, perhaps. Or for my thumb to stop sticking out. Or for my arm to start swinging again. Or – and this is the thing that really made me decide to try something stronger than rasagiline – for the dystonia in my foot to go away.

What I’m hoping not to happen is for any side effects to turn up. One of the more common ones is nausea; my Parkinson’s nurse suggested I get some domperidone to counteract that. So far, I haven’t been affected, and haven’t needed to take the domperidone. Another common one is drowsiness. Considering that I’ve been burning the candle at both ends, lately I don’t think I can lay the blame for my tiredness entirely on the drug, if at all. Less common are the impulsive-compulsive disorders such as those featured in the television programme, Sex Lies and Parkinson’s. Those are the ones I really don’t want anything to do with… and I’m pretty sure that I’m doing okay so far.

More in this series:

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2 thoughts on “Ropinirole Diary: the first week

  1. Stick with it. It took a while for me to get used to it esp the sleepiness but no s/effects are too bad. Have u tried prolonged. Release tabs? I have them cos I can’t be having to take pills 3 x a day. They rock.

    • Thanks, Quarkee. I’ve got my eye on them one-a-day tablets already; just got to get through this starter pack first.

      I think the drug-induced drowsiness has kicked in. I felt like I was going to fall asleep yesterday, as I set off on my latest painting expedition… I had visions of collapsing face first into the paint-smeared board. Of course, it didn’t happen. The wind kept me on my toes. It was possibly a bit breezy for painting outdoors yesterday.

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